Organizaciones que investigan enfermedades genéticas

Genetic Alliance
4301 Connecticut Avenue, N.W.
Suite 404
Washington, DC 20008-2369
info@geneticalliance.orghttp://www.geneticalliance.org/
Tel: 202-966-5557
800 336-GENE (4363)
Fax: 202-966-8553

National Organization for Rare Disorders (NORD)
P.O. Box 1968(55 Kenosia Avenue)
Danbury, CT 06813-1968
orphan@rarediseases.orghttp://www.rarediseases.org/
Tel: 203-744-0100
Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

Von Hippel Lindau Family Alliance
2001 Beacon Street
Suite 208
Boston, MA 02135-7877
info@vhl.orghttp://www.vhl.org/
Tel: 617-277-5667
800-767-4VHL (4845)
Fax: 858-712-8712

IRSA (International RadioSurgery Association)
3005 Hoffman Street
Harrisburg, PA 17110
office@irsa.orghttp://www.irsa.org/
Tel: 717-260-9808
Fax: 717-260-9809